You can actually
watch it melting. The snow. Winter has been long and cold again so there is still
lot’s of snow here, at the end of the road. But the patches on my front yard
are literary disappearing in front of my eyes. I took the first spring walk
yesterday up the field in the late April sun, as far as the snow allowed me to.
My darling cat Sorella and I did our premiere stroll for the year around our
place and I threw away the old Christmas tree brusquely tossed from the second
floor balcony when the holidays were over. Lovely. We are let out from the jail
of frozen winter, and it’s lovely. It’s a big deep breath of life.
Exactly three
months ago I could walk all the way to the creek, half a mile (800 meter) back
and forth. I was so happy! I could do that already! Well, it was only that one
time. Since then my walks have been very short, if at all. I am so sad that my
beloved neighbor Alida, 96 soon to be, and I have been hibernating in our
houses all winter long, and not one single time have I been able to sit at her
kitchen table, drinking our tea, talking about all her lost and gone friends. My
parents and grandparents. Alida providing me all those loose ends telling how
everything is related in our village.
This spring she is
letting me know that she wants to move in to an olds people’s home this fall if
she I still alive. Her lonely days here in the house are way too long. So this
was probably our last winter together at the end of the road. A few steps from
each other during our long days, and yet we couldn’t be together. And it just
breaks my heart. For the both of us. And though I can’t even imagine Alida not
being here, the pain of thinking here gone is so strong it’s making me cry. I
feel like a wall in my house will be gone leaving me exposed to unlimited dark
and cold. I frankly don’t know how I will survive.
When I was cleared
from cancer I decided to live life at it’s fullest, like most people facing
death given a second chance do. I cleaned out a lot of closets determined to
not any more suffer from blisters caused by anything chafing or scuffing. And
before any choice, big or small, ask myself: is this what I want? Is this good
for me? Is this helping me?
Because that’s
what they say now, right? You always have a choice.
Make a wish.
Follow your heart. Reach for the stars. Recognize your dreams. Set goals and
make them happen. Choose your life. That’s what they say.
After the cancer
and chemo my back problems increased for the worst. I was cancer free and
couldn’t wait to live live live, but my body did limit that life strictly. The
pain and the physical restrictions battled down the power and feeling of being
invincible that is often gained by being a survivor. But hey, I don’t have
cancer, I am basically healthy, this is just pain. It’s a drag but you won’t
die from it. You need to be grateful.
You always have a
choice. And when you feel like you don’t, you always have the choice how to
relate to your situation. That’s what they say.
So, I am choosing
not to complain. I am setting the goal to walk to the creek and as month after
month pass and I can’t do it I am trying to be grateful that I can stroll
through the grocery store. The choir rehearsals are like running a marathon and
95 % of my focus is controlling the pain, but I am truly happy that I can be
there. I can’t make me dinner but I am enjoying that I some days am able to
join my home care angel Peter giving him some little assistance in the kitchen.
I can’t have my dinner sitting at the kitchen table, but I am looking forward
to the late afternoons Grey’s Anatomy reruns keeping me company on my couch.
And I am smiling and being nice and never whining. It could be worse. It truly
could be so much worse. I know that for a fact.
So I don’t cry. I
am accepting. And with that acceptance erasing the goals. I am a woman with a
lot of will power. Most people would call me really stubborn when it comes to
what I want to reach and accomplish. I used to be at the gym three times a
week. I took one-hour power walks with dumbbells the days I wasn’t at the gym.
I know how to do this. I want to do this. My body and soul knows the happiness
and contentment of being in power, feeling strong and healthy, even looking a
little bit good. And I love to dance! God how I long to dance!
So, did I choose
this? No, I didn’t. The idea that we are in control of our lives is part
illusion part bullshit. There is very little we can control. And for everyone
less fortunate it’s an unbearable burden stacked upon whatever our trials are.
So, I am
controlling myself, isn’t that what choosing how to handle your situation is
about? I am smiling instead of crying. I am looking at the bright side instead
of complaining. I am deciding that watching TV is an entertainment to be
grateful about and blocking out my needs for seeing friends, going to a
beautiful concert or watching an interesting exhibit. And I am happy about my
nice home, as that’s the only place I can wish for. Erasing the goals. As they
only lead to disappointment.
It’s not until I
am realizing this is probably mine and Alida’s last winter together and I
missed it that it breaks through. The anger, the despair, the rage, the grief,
the loneliness, the incomprehensibility, the WHY WHY WHY???!!! Why did we have
to miss it just because I can’t walk and sit?
This morning I
felt really good. I could move better than I have in months. I had energy. I felt
happy for no particular reason. I think I even hummed on a little tune. I
planned on running some errands that would need a little bit of walking in
between treatments tomorrow. Then it happened again. During the afternoon a slight shooting pinched me
across the sacrum. I was sitting at a chair. Just sitting straight up. And
there it was. The needle. Not a knife, but still, a needle. I haven’t had that
kind of pain since November. Since this lying down life started. And now I’m
there again.
Am I choosing
this? This completely unpredictable life where nothing is certain and there is
zero to trust? Where I need to be prepared for anything at anytime. Where my
situation can change on a split of a second? Where unexpected hope on a good
morning is a dangerous enemy that strikes back on you for seeing a window where
the light finds you? Where most things are chafing and scuffing? Do I sound
bitter? Yes, I am. Deep down under my choice of smiles and no complaints and
looking at the bright side I am tonight finding bitterness. Deep down under
controlling myself to fit in to what’s expected of me in this day and age 2013.
And it doesn’t make me look good, I am aware.
I don’t know how
to end this posting. I don’t have anything encouraging closing up with. I am
not choosing this. That’s all I know. I am not choosing this.
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